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Registry

Section Registry

Interdisciplinary platform for the development and implementation of oncology registry studies

Section Registry

Clinical trials are often indication-specific, as are most of the project groups, working groups and sections of the Swiss Cancer Institute. In contrast, registries often cover several indications. Accordingly, the Registry Section welcomes representatives from various indications and disciplines (oncologists, pathologists, radiologists, data scientists) who are interested in our registry studies.

Mission statement

The section has set itself the goal of defining a standardized and nationally applicable parametric language for describing oncological patient histories, which enables the exchange between platforms and projects, reusability and analysis of health-related data.

Objectives of the Register Section

  1. Development of the Swiss Cancer Institute strategy in relation to registry studies and the SODI (Swiss OncoData Infrastructure) registry concept. The latter describes the framework for project governance, the core dataset and central data storage/processing as implemented in the Swiss Cancer Institute registry studies.
  2. Connecting physicians, data scientists and other researchers for interdisciplinary exchange and to promote their interests.
  3. Evaluating new registries and data projects: At the meetings, study proposals are initiated, further developed and submitted to the Board for review.
  4. Development of new and innovative methods for analyzing and interpreting medical data.
  5. Informing members about new developments in the field of registries.